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    Last Updated: 01/09/2026

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    MediFind found 30 doctor with experience in Wildervanck Syndrome near Grand Rapids, MI. Of these, 27 are Experienced and 3 are Advanced.

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    LocationClose
    30 providers found
      Julie A. Conley
      Advanced in Wildervanck Syndrome
      Advanced in Wildervanck Syndrome

      Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5101, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Julie Conley is a Pediatrics provider in Grand Rapids, Michigan. Dr. Conley has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Legius Syndrome, RASopathies, Neurofibromatosis, and Marcus Gunn Phenomenon.

      Brooke E. Geddie
      Advanced in Wildervanck Syndrome
      Advanced in Wildervanck Syndrome

      Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5101, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      21+ years
      Languages Spoken:
      English

      Brooke Geddie is a Pediatrics provider in Grand Rapids, Michigan. Dr. Geddie has been practicing medicine for over 21 years and is rated as an Advanced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Microphthalmia Syndromic 9, Lenz Microphthalmia Syndrome, Micropthalmia Associated with Colobomatous Cyst, Marcus Gunn Phenomenon, and Vitrectomy.

      Linda Z. Rossetti
      Advanced in Wildervanck Syndrome
      Pediatrics | Medical Genetics
      Advanced in Wildervanck Syndrome
      Pediatrics | Medical Genetics

      Corewell Health Grand Rapids Hospitals Medical Genetics - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 2100, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      10+ years
      Languages Spoken:
      English, Spanish
      Offers Telehealth

      Linda Rossetti is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Rossetti has been practicing medicine for over 10 years and is rated as an Advanced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Smith-Magenis Syndrome, Miller-Dieker Syndrome, Chromosome 6q Duplication, and Chromosome 8p Deletion.

      Learn about our expert tiers
      John W. Winters
      Experienced in Wildervanck Syndrome
      Experienced in Wildervanck Syndrome

      Corewell Health Pediatric Critical Care (PICU)

      100 Michigan Street Northeast, 
      Grand Rapids, MI 
       (0.4 miles away)
      Experience:
      37+ years
      Languages Spoken:
      English

      John Winters is a Pediatrics provider in Grand Rapids, Michigan. Dr. Winters has been practicing medicine for over 37 years and is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. His top areas of expertise are Respiratory Syncytial Virus (RSV) Infection, Koolen De Vries Syndrome, Wildervanck Syndrome, and Microcephaly Deafness Syndrome.

      Shefali Aggarwal
      Experienced in Wildervanck Syndrome
      Experienced in Wildervanck Syndrome

      Corewell Health Pediatric Critical Care (PICU)

      100 Michigan Street Northeast, 
      Grand Rapids, MI 
       (0.4 miles away)
      Experience:
      12+ years
      Languages Spoken:
      English

      Shefali Aggarwal is a Pediatrics provider in Grand Rapids, Michigan. Dr. Aggarwal has been practicing medicine for over 12 years and is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Chondrodystrophy, CHARGE Syndrome, Early Infantile Epileptic Encephalopathy, and Wildervanck Syndrome.

      Lisa D. Maskill
      Experienced in Wildervanck Syndrome
      Pediatric Orthopedics
      Experienced in Wildervanck Syndrome
      Pediatric Orthopedics

      Corewell Health Pediatric Orthopedics - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 4150, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      21+ years
      Languages Spoken:
      English
      Accepting New Patients

      Lisa Maskill is a Pediatric Orthopedics provider in Grand Rapids, Michigan. Dr. Maskill has been practicing medicine for over 21 years and is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Brachydactyly Type C, Brachydactyly Type B, Liebenberg Syndrome, and Brachydactyly Type A2. Dr. Maskill is currently accepting new patients.

      Meghan R. Behrmann
      Experienced in Wildervanck Syndrome
      Experienced in Wildervanck Syndrome

      Corewell Health Pediatric Neurodevelopmental - Grand Rapids

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients

      Meghan Behrmann is a Pediatrics provider in Grand Rapids, Michigan. Dr. Behrmann has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Autism Spectrum Disorder, Delayed Growth, Cardiofaciocutaneous Syndrome, and 15q11.2 Microdeletion. Dr. Behrmann is currently accepting new patients.

      Jessica R. Priestley
      Experienced in Wildervanck Syndrome
      Pediatrics | Medical Genetics
      Experienced in Wildervanck Syndrome
      Pediatrics | Medical Genetics

      Corewell Health Grand Rapids Hospitals Biochemical Genetics - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 2100, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      8+ years
      Languages Spoken:
      English

      Jessica Priestley is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Priestley has been practicing medicine for over 8 years and is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Fabry Disease, Ornithine Transcarbamylase Deficiency, Biotinidase Deficiency, and Multiple Sulfatase Deficiency.

      John W. Kemppainen
      Experienced in Wildervanck Syndrome
      Pediatric Orthopedics
      Experienced in Wildervanck Syndrome
      Pediatric Orthopedics

      Corewell Health Pediatric Orthopedics - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 4150, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      19+ years
      Languages Spoken:
      English
      Accepting New Patients

      John Kemppainen is a Pediatric Orthopedics provider in Grand Rapids, Michigan. Dr. Kemppainen has been practicing medicine for over 19 years and is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. His top areas of expertise are Clubfoot, Legg-Calve-Perthes Disease (LCPD), Knock Knees, and Small Patella Syndrome. Dr. Kemppainen is currently accepting new patients.

      Megan D. Quist
      Experienced in Wildervanck Syndrome
      Experienced in Wildervanck Syndrome

      Corewell Health Pediatric Neurodevelopmental - Grand Rapids

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      12+ years
      Languages Spoken:
      English

      Megan Quist is a Pediatrics provider in Grand Rapids, Michigan. Dr. Quist has been practicing medicine for over 12 years and is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Autism Spectrum Disorder, Microcephaly, DiGeorge Syndrome, and Developmental Dysphasia Familial.

      Lauren E. Fletcher
      Experienced in Wildervanck Syndrome
      Experienced in Wildervanck Syndrome

      Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5101, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      13+ years
      Languages Spoken:
      English

      Lauren Fletcher is a Pediatrics provider in Grand Rapids, Michigan. Dr. Fletcher has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Neurofibromatosis, Marcus Gunn Phenomenon, Gomez Lopez Hernandez Syndrome, and Legius Syndrome.

      Sarah Badran
      Experienced in Wildervanck Syndrome
      Cardiology
      Experienced in Wildervanck Syndrome
      Cardiology

      Helen Devos Children's Hospital Congenital Heart Center Cvts-Grand Rapids

      25 Michigan St NE Ste 4200, 
      Grand Rapids,, MI 
       (0.9 miles away)
      Experience:
      37+ years
      Languages Spoken:
      English

      Sarah Badran is a Cardiologist in Grand Rapids,, Michigan. Dr. Badran has been practicing medicine for over 37 years and is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Pulmonary Atresia with Ventricular Septal Defect, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Pulmonary Atresia.

      Philip D. Nowicki
      Experienced in Wildervanck Syndrome
      Pediatric Orthopedics
      Experienced in Wildervanck Syndrome
      Pediatric Orthopedics

      Corewell Health Pediatric Orthopedics - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 4150, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      22+ years
      Languages Spoken:
      English
      Accepting New Patients

      Philip Nowicki is a Pediatric Orthopedics provider in Grand Rapids, Michigan. Dr. Nowicki has been practicing medicine for over 22 years and is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. His top areas of expertise are Slipped Capital Femoral Epiphysis, Clubfoot, Legg-Calve-Perthes Disease (LCPD), and Knock Knees. Dr. Nowicki is currently accepting new patients.

      John N. Schuen
      Experienced in Wildervanck Syndrome
      Pediatrics | Pediatric Pulmonology
      Experienced in Wildervanck Syndrome
      Pediatrics | Pediatric Pulmonology

      Corewell Health Pediatric Sleep Disorders Clinic - Grand Rapids

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      36+ years
      Languages Spoken:
      English
      Accepting New Patients

      John Schuen is a Pediatrics specialist and a Pediatric Pulmonologist in Grand Rapids, Michigan. Dr. Schuen has been practicing medicine for over 36 years and is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. His top areas of expertise are Cystic Fibrosis, Laryngomalacia, Wolf-Hirschhorn Syndrome, and Periodic Limb Movement Disorder. Dr. Schuen is currently accepting new patients.

      Thomas Carberry
      Experienced in Wildervanck Syndrome
      Pediatric Cardiology
      Experienced in Wildervanck Syndrome
      Pediatric Cardiology

      Helen Devos Children's Hospital Congenital Heart Center

      25 Michigan St NE Ste 4200, 
      Grand Rapids,, MI 
       (0.9 miles away)
      Experience:
      11+ years
      Languages Spoken:
      English

      Thomas Carberry is a Pediatric Cardiologist in Grand Rapids,, Michigan. Dr. Carberry has been practicing medicine for over 11 years and is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. His top areas of expertise are Arrhythmias, Brugada Syndrome, Short QT Syndrome, and Postural Orthostatic Tachycardia Syndrome (POTS).

      Bradd G. Hemker
      Experienced in Wildervanck Syndrome
      Pediatrics | Palliative Medicine
      Experienced in Wildervanck Syndrome
      Pediatrics | Palliative Medicine

      Corewell Health Pediatric Pain And Palliative Care 5301 - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5301, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      24+ years
      Languages Spoken:
      English
      Accepting New Patients

      Bradd Hemker is a Pediatrics specialist and a Palliative Medicine provider in Grand Rapids, Michigan. Dr. Hemker has been practicing medicine for over 24 years and is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. His top areas of expertise are Trisomy 13, Koolen De Vries Syndrome, Microcephaly Deafness Syndrome, and CHARGE Syndrome. Dr. Hemker is currently accepting new patients.

      Rachel Macak
      Experienced in Wildervanck Syndrome
      Pediatrics | Palliative Medicine
      Experienced in Wildervanck Syndrome
      Pediatrics | Palliative Medicine

      Corewell Health Pediatric Pain And Palliative Care 5301 - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5301, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      7+ years
      Languages Spoken:
      English

      Rachel Macak is a Pediatrics specialist and a Palliative Medicine provider in Grand Rapids, Michigan. Dr. Macak has been practicing medicine for over 7 years and is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Wolf-Hirschhorn Syndrome, HNRNPH2-Related Disorder, Koolen De Vries Syndrome, and Microcephaly Deafness Syndrome.

      Christopher Ratnasamy
      Experienced in Wildervanck Syndrome
      Pediatric Cardiology
      Experienced in Wildervanck Syndrome
      Pediatric Cardiology

      Helen Devos Children's Hospital Congenital Heart Center Cvts-Grand Rapids

      25 Michigan St NE Ste 4200, 
      Grand Rapids,, MI 
       (0.9 miles away)
      Experience:
      31+ years
      Languages Spoken:
      English

      Christopher Ratnasamy is a Pediatric Cardiologist in Grand Rapids,, Michigan. Dr. Ratnasamy has been practicing medicine for over 31 years and is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. His top areas of expertise are Congenital Heart Block, Brugada Syndrome, Postural Orthostatic Tachycardia Syndrome (POTS), and Short QT Syndrome.

      Anna Carlson
      Experienced in Wildervanck Syndrome
      Pediatrics | General Surgery
      Experienced in Wildervanck Syndrome
      Pediatrics | General Surgery

      Corewell Health Pediatric Craniofacial And Plastic Surgery - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5201, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      12+ years
      Languages Spoken:
      English
      Accepting New Patients

      Anna Carlson is a Pediatrics specialist and a General Surgeon in Grand Rapids, Michigan. Dr. Carlson has been practicing medicine for over 12 years and is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Micrognathia, Sunken Fontanelles, Multiple Epiphyseal Dysplasia, Osteotomy, and Bone Graft. Dr. Carlson is currently accepting new patients.

      Experienced in Wildervanck Syndrome
      Experienced in Wildervanck Syndrome

      Mary Free Bed Rehabilitation Hospital

      235 Wealthy Street Southeast, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      37+ years
      Languages Spoken:
      English
      Accepting New Patients

      Douglas Henry is a Neurologist in Grand Rapids, Michigan. Dr. Henry has been practicing medicine for over 37 years and is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. His top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, and Delirium. Dr. Henry is currently accepting new patients.

      Showing 1-20 of 30

      Last Updated: 01/09/2026

      What is the definition of Wildervanck Syndrome?

      Wildervanck syndrome is a condition that affects the bones in the neck, the eyes, and the ears. It is characterized by Klippel-Feil anomaly (in which the bones of the neck fuse together), Duane syndrome (an eye movement disorder), and hearing loss. Wildervanck syndrome occurs primarily in females. In most cases, Wildervanck syndrome occurs randomly for unknown reasons in a family with no prior history (sporadically), though a deletion on the X chromosome was identified in one individual with Wildervanck syndrome. X-linked dominant inheritance has been suggested due to the high prevalence of affected females.

      When should I see a Wildervanck Syndrome doctor near Grand Rapids, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Wildervanck Syndrome doctor near Grand Rapids, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Wildervanck Syndrome doctors near Grand Rapids, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Wildervanck Syndrome doctors near Grand Rapids, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Wildervanck Syndrome doctor near Grand Rapids, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Wildervanck Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Wildervanck Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Wildervanck Syndrome doctor near Grand Rapids, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Wildervanck Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Wildervanck Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Wildervanck Syndrome doctors near Grand Rapids, MI?

      Look for the filter feature on the left side of the Wildervanck Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Wildervanck Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Wildervanck Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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